Other Resources / Links
ALS of Utica Forms
Registration Form (acrobat reader required)
Reimbursement Form (acrobat reader required)
Medical Support
The Amyotrophic Lateral Sclerosis Association
-
Upstate New
York Chapter
If you have any Medical Questions or Concerns please call 866-499-7257,
or visit their website at
www.ALSAUpstateNY.org
The Muscular Dystrophy Association
ALS Research and Clinical Center located in Syracuse. They also
run the Utica Support Group at Faxton Hospital. Phone: 315-451-8269
Clinic: 315-464-4627, or visit http://als.mdausa.org
St. Peter's ALS
Regional Center
They provide people with ALS and their
families with a comprehensive and specialized blend of services and resources.
The Center provides both a medical and emotional system of support to help
maintain quality of life throughout the course of the disease. They serve
a 90 mile radius outside of Albany. Phone: 518-525-1629 or visit:
http://www.stpetershealthcare.org/how_we_care_for_you/als/
Onieda County
Office for the Aging
They concentrate on providing local
seniors and disabled constituents a broad spectrum of programs. Each
program is designed to maximize an individual's independence and autonomy so
that each person is able to lead a dignified and meaningful life. Please
call 798-5456 to set up your free consultation.
Senior Network
Health, LLC
Their goal is to help people live in
their home for as long as possible. For more information,
please call 315-624-4545.
Medical Equipment
TRAID Center at UCP
Phone: 315-737-9012 ext 241
Loan closet available to ALS patients.
Now Located at 3390 Brooks Lane, Chadwicks, NY 13319
TRAID Project Phone: 800-522-4369
NYS Office of Advocate for Persons with disabilities. Located at One
Empire State Plaza, Suite 1001, Albany, NY 12223-1150
Resource for Independent Living
Phone: 315-797-4642
Loan Closet, Library, Communication Device Information, Medicaid Information.
Located at 401-409 Columbia Street, Utica, NY 13501
Senior Wheels USA
A nationwide service program
specializing in helping people meet their need for Power Mobility. Call
Toll Free at 800-246-6010 or visit them on the web at
www.seniorwheelsusa.com
Support Groups
MDA Utica Support Group held at Faxton Hospital. Call 315-798-4080 or 315-451-8269 to verify dates and discussion topics.
Office of the Aging holds Caregiver Support Groups and Caregiver Retreats. This caregiver support is for any and all caregivers including those taking care of ALS patients. The next caregiver retreat is coming up on November 13, 2003. For more information please contact Office of the Aging at 798-5456.
ALS 101 is an intensive, day-long interactive session designed by ALS Therapy Development Foundation, in Massachusetts. These sessions are held at many different locations, for more information please call 617-441-7200 or visit their website at http://www.als.net/alstdf/resources/als101.asp
Grants
Ride for Life
Has grant applications available for ALS patients to apply for Free Limited
In-home Respite Care up to $1500. The program is called Care for Life.
This website also has an abundance of valuable information. Visit
www.rideforlife.com
Veterans
The ALS Association and U.S. Department of Veterans Affairs has establish a registry of veterans with ALS. For more information about the ALS Registry, eligible veterans or their family members or friends can call 1-877-DIAL-ALS or email als@med.va.gov
Wheelchair Vehicle Services
Wheelchair Getaways of New York
They offer wheelchair accessible vehicle rentals by the day or week. They
are located in Poughkeepsie, NY but have a location in Syracuse for pickup and
delivery. The also offer a vehicle delivery service for a fee. For
more information call toll free 866-725-1803 or visit
www.wheelchairgetaways.com
Office for the Aging
They are currently working on a minimal fee wheelchair transportation
service for the local area. Please call 798-5456 for more information.
Explaining ALS to Children
Great interactive website that helps explain ALS to children. http://www.march-of-faces.org/KIDS/moe1.html
Other
Your Neighbors, Inc.
They provide support and help to maintain independent home living by:
Being a friendly visitor, Providing telephone reassurance, Helping meet
transportation needs, Promoting community awareness, Preparing Meals.
Located at PO Box 564, New Hartford, NY - Phone - 315-732-6804
Informational Websites
http://www.lougehrigsdisease.net
http://www.alslinks.com
http://www.geocities.com/sweekes99/ALStitle.html
http://hedwig.mgh.harvard.edu/alsconsortium/aboutneals.html