Resources

Joe’s Handyman Service – 315-525-9992
Hello, My name is Joseph Visingardi. I am a teenager that has recently been thinking of ways to give back to this great community of Central New York. I have wanted to get involved with the ALS community in particular because 5 years ago my grandmother was diagnosed with the disease and it made me understand that it is very difficult for these people to do very simple daily activities. Everyday I would aid my grandmother in such activities. I would now like to do that for others as well by using skills my father has taught me. Together we built my grandmother a ramp for easier access to her house. My father and I have very good knowledge of construction. We have done big projects such as building my camp, all the way to projects as little as building a small coffee table. I am a trustworthy, hardworking reliable, teenager with a wide variety of skill sets. My Dad will accompany me on all jobs when needed. We are happy to assess the situation and see if it is within the scope of our service.
Avalibility: Weekdays- After school , Weekends- Mid-day
If I can be of service please call after 3:00 pm, 315-525-9992

Other Resources:
The following resources and links have been provided by Ashley Demorest.  Ashley is 17 years old and worked on this as a Girl Scouts Gold Project after losing her Dad to ALS.  ALS of Utica was proud to serve as Ashley’s advisor on this project.

Medical Brochure: Click here to download the Medical Brochure

Medical Supply

AireRx Medical Seatingwww.airerx.com helps you receive seating or bedding.

All Time Medicalwww.alltimemedical.com this is an online store that supplies medical equipment and supplies for your needs. The only thing with this website is they don’t bill insurance but they have affordable prices.

Aquila Corporationwww.aquilacorp.com is a place for wheelchair cushions. These are to prevent sores.

Blue Chip Medical Product INC.www.bluechipmedical.com they sell therapeutic supports and surfaces for beds and wheelchairs.

Columbia Medicalwww.columbiamedical.com provider for premium products. You can look for locations near you to buy items that you may need.

Ease Cushionwww.easecushion.com this helps prevent bed sores and has many great reviews.

Patterson Medicalwww.sammonspreston.com this place has different items to buy for different medical needs.

The ROHO Groupwww.therohogroup.com they provide products for skin protection, positioning and comfort solutions.

Star Cushion Products INC. – www.starcushion.com they sell wheelchair cushions.


Caregivers

Caring Bridgewww.caringbridge.org this website simplifies communication and provides encouragement. There is also a personal website to look at or you can create a website for yourself or your loved one.

Caring Connectionswww.caringinfo.org this website provides support for people caring for a loved one. It also talks about planning ahead.

Empowering Caregiverswww.care-givers.com provides caregivers support, and to create a more meaningful experience.

Family Caregiver Alliancehttp://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2137this is for NY and it has many different things listed for mostly anything health related.

National Alliance for Care givinghttp://www.caregiving.org/coalitions/coalitions-by-state/new-york this is for NY this focuses on family care giving

National Family Caregivers Associationwww.nfcacares.org helps people speak up for their loved ones.

Strength for Caringwww.strengthforcaring.com this is meant to provide a range of expert content and information. They have just for caregivers, caring for others, connecting caregivers, and a resource center.

Today’s Caregiverwww.caregiver.com or for local resources for NY http://caregiver.com./regionalresources/states/NY/index.htm this website can help caregivers give the best care that the patient needs.


Organizations


Adult Vocational Rehabilitation Services
http://www.acces.nysed.gov/vr/adult_vocational_rehabilitation_services/about.htm there is an office located in Utica. They are here for people with disabilities to help them find opportunities for jobs within the community.

American Music Therapy Associationwww.musictherapy.org music therapy can be used to promote wellness, manage stress, alleviate pain, express feelings, enhance memory, improve communication, and to promote physical rehabilitation. To find one in your area go to the side of the homepage and click FIND a music therapist.

Centers for Disease Control and Preventionwww.cdc.gov this is information to protect your health.

Centers for Medicare and Medicaid Services (CMS)www.cms.gov this is a place you can look at to see for better coverage, better health and lower costs for your healthcare.

Department of Health and Human Serviceswww.hhs.gov they work closely with the state and local government.

Disability.govwww.disability.gov includes information on disability programs and services nationwide.

MDA (Muscular Dystrophy Association)www.mda.org when you go to the website there is a zip code locater and type in your zip code. There is an office in Syracuse, 6315 Fly Road, East Syracuse, NY 13057 phone (315) 451-8269. They deal with neuromuscular diseases.

Oneida County Office of the Agingwww.ocgov.net/oneida/ofa Even through you may not live in Oneida County many counties have an office of the aging. There are programs to help you keep your independence.

Medicare Rights Centerwww.medicarerights.org this is a national organization that ensures you understand your rights and benefits and you get the health care that you need.

Medline Pluswww.nlm.nih.gov/medlineplus/ it brings you information about diseases, conditions, and wellness issues.

National Council on Agingwww.benefitscheckup.org there is a mission to improve the lives of seniors.

NY Connectswww.nyconnects.org explores the different programs for people.

New York State Citizen Guidehttp://www.nysegov.com/citGuide.cfm?superCat=106 has different categories under Health so that you can find what you are looking for in New York State.

Regional Center for Independent Livingwww.rcil.org they help people with disabilities to be living independent in there home. They have different programs that include Ready to Achieve Mentoring Program, Employment program, Peer Advocacy and Benefits Advisement. One is located in Rochester.

Resource Center for Independent Livingwww.rcil.com they provide independent living and advocacy services for those with disabilities. There are two offices in Utica. 409 Columbia Street and 1607 Genesee Street.

Senior Network Health, LLC– 315-624-4545 There goal is to keep you home as long as possible.

The Clearinghouse for Home and Community Based Serviceswww.hchs.org this is a website that has resources for research, policy making and program development.

The New York State Office for the Agingwww.aging.ny.gov their mission is to help older NY people stay as independent as possible through many different programs.

TRAIDhttp://cqc.ny.gov/advocacy/assistive-technology/traid-regional-offices there are many locations in NY. They have a program where you can sell donate or get used devices for people with disabilities.

United States Department of Healthwww.health.ny.gov this website talks about the current news for health for New York State. It also has links for the current issues that are going on.

Transportation

Adaptive Driving Alliancewww.adamobility.com is a nationwide group of vehicle modification dealers who provide van conversions, hand controls, wheelchair lifts, scooter lifts, tie downs, conversion van rentals, Para transit and other adaptive equipment for drivers and passengers with disabilities.

National Mobility Equipment Dealers Associationswww.nmeda.com this is to help with transportation for people with disabilities being able to drive or be transported in a vehicle with mobility equipment.

Wheelchair Getawayswww.wheelchairgetaways.com This is a place that can take you where you need to go when you have a wheelchair.

 

Prescription Help/ Financial Help

 

Benefits Check Upwww.benefitscheckup.org People who need help paying for items, this may help. They ask you a series of questions to help you. After answering the questions they may help you with medications, food, taxes and many more.

Extra Helpwww.ssa.gov/presciptionhelp/ to qualify for the Extra Help, a person must be receiving Medicare, have limited resources and income, and reside in one of the 50 States or the District of Columbia.

Needy Medswww.needymeds.com this is an organization that helps people find programs to help them find ways to pay for their medication and other costs for healthcare.

Partnership for Prescription Assistancewww.pparx.org helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free.

RxAssistwww.rxassist.org this is a database that helps find patient assistance programs. This can help both health care professionals and patients.

RxHopewww.rxhope.com is another place to get help with the patient assistance programs.